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Dutch T1D's need help from our international diabuddies! . -English below- . Tijd voor actie! . Ondanks dat de petitie met 50.000 handtekeningen veel belangstelling en steun kreeg vanuit de Tweede Kamer, besloten minister Bruins en het Zorginstituut er niets mee te doen. Daarom is het nu tijd om te laten zien wat dit betekent! Dit is deel 1 van ons actieplan. . In veel andere landen worden glucosesensors wel vergoed, en het is de hoogste tijd dat Nederland die stap ook gaat maken. . We hebben jouw hulp nodig! In dit filmpje legt Loes uit hoe je kan helpen? Doe je mee? En al jouw internationale diabuddies ook? Deel je foto's met #sensorvergoeding en #CGMforall of mail naar info@sensorvergoeding.nl. Deel dit filmpje met iedereen die Nederland aan sensorvergoeding kan helpen! Samen staan we sterk! . Time for action! . In june of this year, we petitioned the Dutch government with 50.000 signatures and a lot of background information and research, to have CGM (Continuous Glucose Monitoring and Flash Glucose Monitoring) covered by insurance. It is already covered in our neighbouring countries, Belgium and Germany, and across the world there are many countries with CGM coverage. Despite a lot of support from our Dutch elected officials, the minister for medical health did nothing to help us. So now we need your help to show the policy makers how it's done on your country: show us your CGM! The movie will show you how. Share your picture with #cgmforall of mail it to us at info@sensorvergoeding.nl. Will you help us? We are confident that together, we can make this happen! . . . . #sensorvergoeding #cgmforall #t1d #type1diabetes #diabuddies #diabetestype1 #t1dlookslikeme #petitie #petitiesensorvergoeding #sensor #sensors #sensoren #sensorvergoeding #zorg #ministerbruins #tweedekamer #glucosesensor #cgm #fgm #dexcom #freestylelibre #eversense #guardianconnect #zorgverzekering #basispakket #zorginnederland #technologie #chronischziek  #deglucosesensorisgeengadgetmaarbitterenoodzaak

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SugarFam joins the motion, do you?!

My name is Eyenalem, I have diabetes and I am one of the owners and co-founder of SugarFam. SugarFam is a company that wants to ensure that everyone with diabetes can feel like a “normal” person. We do this by designing and producing covers for medical devices that are worn on the body. With this we hope that nobody will be ashamed of their medical device (which is also a bitter necessity for people with diabetes) but that they can be proud of it!

One of the medical devices is a continuous glucose sensor. This device is worn on the body, and ensures that you have insight into your blood sugar levels at any time of the day, without having to do a finger prick. I would just like to say that I do not experience fingerpricking as the most annoying thing. It is of course a nice addition to the sensor that you do not have to prick your finger 8-10 times a day. But the thing that bothers me the most is that you only have insight into your blood glucose values at the moment that you measure it. But you never know what happened to your sugar between the 2 measuring moments.

My sugar is never stable. My average blood glucose values for the past six months were between 7.6 and 8.5. Because of this I was often not comfortable, but the continuous blood glucose sensor was not reimbursed by my insurance. So I decided to purchase one myself.
I love it! I have more insight into my values and I feel good about myself. I finally have the feeling that I can also be a “normal” person and live a “normal” life. These insights enable me to adjust my insulin pump better, making my blood glucose values a lot more stable. Only I can’t fit €120 in my budget every month. This means that I won’t have stable blood glucose values all the time.

To be eligible for the reimbursement of a continuous blood glucose meter, you must meet certain indications. One of these is that you have to have an average blood glucose value of more than 8.0 mmol / mol 4x in succession. I find this a very crooked criteria, because it does not include how often you measure all your sugar. So if you measure your sugar often, and you are therefore well-adjusted, you are basically punished because your average values are good. And you therefore do not qualify for the sensor. But the people who “neglect” their diabetes and never look after it and therefore are not properly adjusted, they will be reimbursed. These criteria can therefore ensure that everyone who is well-adjusted will neglect his / her sugar to meet the criteria and have a higher average than 8.0 mmol / mol. This is at the expense of the health of these people.

That is why I think everyone with diabetes should be reimbursed for a continuous blood glucose meter. I think everyone has the right to live a “normal” life. And a continuous blood glucose meter certainly contributes to this.

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